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Date Joined Jan 2008
Total Posts : 2
   Posted 11/11/2008 2:26 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
Hi, my name is Kathleen Longos and I have nf 2. I was diagnosed with billateral acoustic neuromas years ago that have only been monitered up till now. I fell like my symptoms have slightly worsened and I am looking for treatment. I am only 22 and am not ready to give up my ability to hear. I am a music major and cant see meaning in a life without my passion. If there is anyone who has recieved ck tratments for nf 2 with a good or bad outcome. Please share your story with me. Thank you for your time. Katie
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